Mobilizing Computable Biomedical Knowledge Meeting

Co-sponsored by the National Library of Medicine and the University of Michigan


For centuries, the needs of biomedical research and practice have been served by knowledge represented in human readable forms: words and pictures disseminated largely via books and journals. More recently, as models, algorithms, and guidelines have gained importance in health and biomedical domains, the representation, curation, and distribution of these knowledge artifacts in computable forms have become topics of growing importance and interest. It is increasingly clear that management of computable knowledge will be essential to the success of Precision Medicine, the achievement of high-functioning Learning Health Systems, and more generally to the advancement of biomedical science. Seen in this light, making biomedical knowledge "FAIR" (Findable, Accessible, Interoperable, and Reusable) is of equivalent importance to making biomedical data "FAIR".


This open meeting on July 10 and 11, 2018 is a natural next step from an initial meeting in Ann Arbor in October, 2017 where a diverse group of forty persons began exploring the technical, policy, and legal challenges of "Mobilizing Computable Biomedical Knowledge" (MCBK). The goals of this meeting include advancing the development of a multi-stakeholder CBK community and taking some initial steps toward establishing necessary CBK standards, policies, and governance.


Regards,

Charles Friedman, University of Michigan
Rachel Richesson, Duke University

Meeting Co-Chairs



Conference Details

Tuesday, July 10 - 8:00am - 6:30pm

Tuesday - 4:00 - 6:30pm Poster Sessions

Wednesday, July 11 - 8:00am - 3:00pm


U.S. National Library of Medicine

8600 Rockville Pike

Bethesda, MD 20894


Conference Speakers

Patricia Flatley Brennan, RN, PhD, Director, National Library of Medicine

Don Rucker, MD, National Coordinator for Health Information Technology (ONC)

Eric Dishman, Director of the All of Us Research Program, National Institutes of Health 


Registration Information

Registration is taking place now through June 27, 2018.  

Early Bird Registration is offered at a special rate of $99.00 which covers the full cost of the two day conference.  

The reduced rate will go through May 8, 2018 after which time the rate will increase to the regular rate of $149.00.   

Limited space is available for the meeting so early registration is strongly recommended.  

To register, click here or on the "Register Now" link above. 

Federal Employees: Please send an email to mcbkconference2018@umich.edu for a Federal Employee discount code. 



Planning Committee

Julia Adler-Milstein, PhD, Associate Professor UCSF School of Medicine

Jane Blumenthal, MSLS, AHIP, FMLA, Associate University Librarian and Director, Taubman Health Sciences Library, University of Michigan

Greg Cooper, MD, PhD, Professor, Department of Biomedical Informatics and of Intelligent Systems, Vice Chairman, Department of Biomedical Informatics, University of Pittsburgh School of Medicine

Milt Corn, MD, FACP, FACMI, Deputy Director for Research and Education, National Library of Medicine

Chris Dymek, Ed.D., Director, Health IT Division, Agency for Healthcare Research and Quality

Peter Embi, MD, MS, Chief Executive Officer, Regenstrief Institute

Bob Greenes, MD, PhD, Professor, Department of Biomedical Informatics, Arizona State University

Nancy Lorenzi, PhD, MA, MS, Vice President for Strategic Change Management, Professor of Biomedical Informatics, Clinical Professor in Nursing, Vanderbilt University Medical Center

Dan Masys, MD, FACMI, Affiliate Professor, Department of Biomedical Informatics and Medical Education, University of Washington school of medicine

Blackford Middleton, MD, MPH, MSc, FACMI, Chief Informatics and Innovation Officer, Apervita, Inc.

Mark Musen, MD, PhD, Professor of Medicine (Biomedical Informatics Research) and Biomedical Data Science, Stanford Health Policy

Jerry Perry, MLS, Associate Dean and Director AHSL, The University of Arizona Health Sciences Library

Chris Shaffer, University Librarian and Assistant Vice Chancellor, Parnassus Library, University of California San Francisco

Umberto Tachinardi, MD, Director, Biomedical Informatics, University of Wisconsin- Madison

John Wilbanks, Chief Commons Officer, Sage Bionetworks


Who Should Attend

We welcome to the meeting anyone interested in building a community to accelerate the application of biomedical knowledge into practice, and more specifically to achieve this by representing knowledge in computable forms so it can be better curated, managed, and disseminated. The meeting will explore issues of policy and governance as well as issues of technology and standards. The topics to be discussed are applicable to the basic, clinical and translational sciences.


We have designed the meeting to be highly inclusive. We welcome participation from the public and private sectors as well as individuals with backgrounds in informatics, information and knowledge management, population health, and the full range of biomedical sciences. We hope the meeting will include individuals who bring a patient perspective on the issues to be examined as well as those whose interests emphasize health care quality and value.


Meeting Agenda

The goal of the meeting, co-sponsored by the National Library of Medicine and the University of Michigan, is to advance computable biomedical knowledge by bringing together a diverse community of interested stakeholders, engaging them in activities that will create shared understanding of state-of-art and challenges to further progress, and generate three deliverables:


1. A "manifesto" documenting the importance of computable biomedical knowledge to the improvement of human health.

2. A clear "action plan" for developing further community cohesion, collaboration, and advancement toward making biomedical knowledge FAIR  (Findable, Accessible, Interoperable, and Reusable).

3. One or more "challenge problems" that must be solved as a prerequisite to further progress.


A draft of the Manifesto will be generated by the meeting Planning Committee and circulated to all registered participants for review and comment in advance of the meeting. A revised version of the Manifesto will be presented and further discussed early in the meeting. The action plan will be developed through group discussions during the meeting, and will address such topics as standards, governance, and infrastructure. Group discussions will also identify the challenge problems for the community.

The preliminary meeting agenda below will be refined as the planning progresses.


Tuesday, July 10

8:00 – 9:00am         Registration and Light Refreshments
9:00 – 10:00am       Welcome and Opening Remarks, Charles Friedman and Rachel Richesson

* Recap of October Computable Biomedical Knowledge meeting

* Establish idea of community

* Provide background and set the stage to clearly define space & problem(s)

* Provide goal(s) of the meeting

10:00 – 10:15am     Perspectives from National Leaders: Dr. Don Rucker, National Coordinator for Health Information Technology (ONC)

10:15 - 10:45am      Presentation of the Manifesto Document, Nancy Lorenzi 

10:45 – 11:00am     ~ Break ~ 

11:00 – 12:15pm     Panel Discussion: State of the Art in Computable Biomedical Knowledge, Mark Musen 

* Apervita – Blackford Middleton

* KGRID – Allen Flynn

* Semedy – Roberto Rocha

* AHRQ – CDS Connect – Ed Lomotan 

12:15 – 1:00pm       Working Lunch: Poster and System Demo Preview

1:00 - 2:15pm          Computable Biomedical Knowledge Theme-Based Breakout Discussions: Developing Action Plans

* Standards for Mobilizing Computable Biomedical Knowledge, Rachel Richesson

* Technical Infrastructure for Mobilizing Computable Biomedical Knowledge, Peter Boisvert

* Sustainability for Mobilization and Inclusion, Chris Dymek

* Policy and Coordination to Ensure Quality and Trust, Jodyn Platt

2:15 - 2:45pm          ~ Break ~

2:45 – 3:30pm         Breakout Session Report Out and Integration, Charles Friedman 

3:30 – 3:45pm         “Open Mic” Remarks from Participants

3:45 – 4:00pm         Day 1 Summary and Introduction of Computable Biomedical Knowledge Open Reception Activities, Rachel Richesson 

4:00 – 6:30pm         Poster Session and System Demonstrations

4:00 - 4:30pm - Poster Session - Attended by Authors

4:30 - 5:30pm - System Demonstrations

5:30 - 6:30pm - Poster Sessions - Attended by Authors


Wednesday, July 11

8:00  – 9:00am        Registration and Light Refreshments
9:00 – 9:30am         Summary of Day 1 and Plan for Breakout Groups, Charles Friedman and Rachel Richsson 
9:30 – 10:00am       Perspectives from National Leaders: Patti Brennan, Director, NLM 
10:00 – 10:15am     ~ Break and Transition ~
10:15 – 12:00pm     Computable Biomedical Knowledge Theme-Based Breakout Discussions 

12:00 - 12:45pm      Working Lunch: “Mix and Mingle” Discussion of Action Plans and Challenge Problems

12:45 – 1:00pm       Perspectives from National Leaders: Eric Dishman, Director of the "All of Us" Research Program, National Institutes of Health 

1:00 - 1:30pm          Group Report-Outs on Challenge Problems
1:30 – 2:15pm         Challenge Problem Reactor Panel
2:15 – 2:45pm         “Open Mic” Comments, Charles Friedman and Rachel Richesson
2:45 – 3:00pm         Wrap-Up and Next Steps, Douglas Van Houweling

3:00pm                    ~ Adjourn ~


**The "light refreshments" and "working lunch" are provided by The University of Michigan, a co-sponsor of the MCBK Meeting.  


Visitor Information

All visitors to the NLM will be required to show one (1) form of identification (a government-issued photo ID-driver's license, passport, green card, etc.) and to state the purpose of their visit.


The NIH Gateway Center is located adjacent to the Medical Center Metro Station at the South Drive entrance to campus from Rockville Pike / Wisconsin Avenue (Route 355). It combines visitor parking, non-commercial vehicle inspection and visitor ID processing, all in one location. The NIH will process all visitors in vehicles or as pedestrians.


Due to the checking of IDs at the perimeter, employees and visitors will not be required to show their ID again to gain access to the majority of buildings on the NIH Bethesda campus during the normal business day. Employees and visitors should continue to wear their identification prominently at all times while on campus.


Guards will remain at certain buildings to address specific program requirements such as sensitive research and safety concerns. At building entrances where guards are posted:

Visitors may be required to log in, wear a visitors pass and have an employee escort them through the building.

Security staff will be looking for and confiscating any suspicious or potentially dangerous materials. U.S. Code prohibits bringing any dangerous weapons onto Federal property, including anything with a blade longer than 2 ½ inches.          

Meeting participants may want to leave extra bags or personal materials at their hotel to minimize the time needed for inspection.

Visitors may be required to pass through a metal detector and have bags, backpacks or purses inspected or x-rayed as they enter buildings.



Hotel Accommodations

A block of rooms has been reserved at the Bethesda Marriott under the MCBK Conference starting at a nightly rate of $160 for a single room.  Rooms need to be booked by  June 4, 2018 to qualify for the conference rate.  Please call toll free 1(800) 228-9290 for international booking or 1(800) 393-3412.  To book online please click here on or before Monday, June 4, 2018.  For more information about the hotel please click here: Bethesda Marriott


                                        

                                    

                                        


Local Airports

Ronald Reagan Washington National Airport (DCA)

Airport Phone: +1 703-417-8000

Hotel direction: 21 miles NE

This hotel does not provide shuttle service.

Alternate transportation: Capitol City Transportation; fee: 50 USD (one way); reservation required

Estimated taxi fare: 45 USD (one way)

Bus service, fee: 35 USD (one way)

Subway service, fee: 3.25 USD (one way)

Visit DCA airport website

Washington Dulles International Airport (IAD)

Airport Phone: +1 703-572-2700

Hotel direction: 25 miles NE

This hotel does not provide shuttle service.

Alternate transportation: Capitol City Transportation; fee: 60 USD (one way); reservation required

Estimated taxi fare: 50 USD (one way)

Bus service, fee: 45 USD (one way)

Visit IAD airport website

Baltimore/Washington International Thurgood Marshall Airport (BWI)

Airport Phone: +1 410-859-7111

Hotel direction: 35 miles SW

This hotel does not provide shuttle service.

Alternate transportation: Please contact the hotel; fee: 100 USD (one way); reservation required

Estimated taxi fare: 60 USD (one way)

Bus service, fee: 45 USD (one way)

Visit BWI airport website


Travel to and from the National Library of Medicine

Shuttle service will be provided for hotel guests to and from the Marriott. The shuttle will depart for the Library at promptly 7:15am and will leave to return to the hotel at promptly 6:30pm Tuesday.  On Wednesday, the shuttle will depart the hotel again at 7:15am and 3:15pm from the Library.  For those driving, parking at the National Library of Medicine is very limited and will cost $12/day. 



Registration Information

Open registration is now closed. Federal employees may still register via the registration site.  All others must email us to request permission to register (which may/may not be possible)  To register, click here or on the "Register Now" link above.

Federal Employees requesting the discount code or those requesting permission to register: Please email: mcbkconference2018@umich.edu.


Privacy Policies

Your privacy and security are very important to us. You will be registering for the MCBK meeting through IRIS registration and redirected to Authorize.net to make your payment.  Please feel free to click on each link for a detailed privacy policy from IRIS Registration and Authorize.net.


Payment Information

Payment is required upon submission of registration. The preferred method of payment is by credit or debit card. Accepted forms of payment include Visa, MasterCard, American Express, or Discover Card. Your credit card will be charged at the time you complete your online registration. Payments will appear as a charge from Conference Management Services.


Declined Payment

If you are an international guest, please note the charge going through to your credit card will be processed in the United States. Due to this, it is important that if your card is declined first ensure all of your information has been entered correctly and that it is a card that we accept. If your payment still cannot be processed contact the customer service department at the company your card is issued through in order to help troubleshoot payment.


Refunds and Cancellations

Cancellation notification must be received no later than June 27, 2018 in order to qualify for a refund. There will be a $35.00 fee associated with canceling your registration. Refunds requested after 120 days from the original payment date will need to be done on an individual basis with direct contact from Conference and Event Services. To cancel your registration, please contact Conference and Event Services via e-mail at conferences@umich.edu or by phone at 734.764.2000.


Confirmation

You will receive a detailed confirmation from Iris registration and a receipt from Authorize.net immediately following the submission of this form. 



Contact Information

For questions regarding registration please contact:

University of Michigan, Conference and Event Services

1320 Hubbard, 2111 Eaton House

Ann Arbor, MI 48109

734.764.2000 - phone

734.764.1557 - fax

conferences@umich.edu


Can I only attend one day of the conference?

Yes,  you do not have to attend both days of the conference to participate. 

What is the one day price?

The price for the conference will remain the same whether you attend one day or two. 

Will on-site registration be available? 

Yes, on-site registration will be available both days, however, there is a max capacity for the meeting and we are anticipating a high turn out so we do encourage you to register prior to the event.  

Who is this conference for? 

Anyone!  We encourage all with an interest to attend.